I am currently recruiting participants for a research project that investigates how carers manage or help to manage the social media accounts for people with dementia (for example, Facebook, Instagram, Twitter, etc).
Participants will be asked to keep a diary related to the activities they undertake on behalf of the person with dementia for two weeks, followed by an interview which can be conducted in person or via phone or video call. (Participants do not need to be the primary carer, but they should play a role in helping to manage social media accounts.)
If you are interested in taking part
of this study, please contac me at firstname.lastname@example.org.
More about this study:
The project is titled “Social media by proxy: strategies for managing the online profiles of adults with dementia” and is being undertaken with Dr Gemma Webster (PI). The work is funded by a Carnegie Trust Research Incentive Grant.
The work was developed based on Gemma’s previous work with people with dementia, carers, and dementia support organisations and my own PhD work on social media use. The combination of these research areas is strengthened by the fact that social media use by older adults is at an all-time high and the increase in people with dementia*. This brings the ongoing discussions of social media use in today’s society to a growing population of users.
The general goal of this research is to identify how people manage the social media accounts of adults with dementia “by proxy”. This includes:
- How “proxies” manage social media accounts for people with dementia in their care;
- How and if people with dementia engage with their social media accounts (with or without support); and
- What kind of support (if any) “proxies” have for managing these social media accounts.
For more information about this research, or to note interest in participating, please contact me at email@example.com.
Note: This project has been given ethical approval by Edinburgh Napier University.
And please feel free to re-share this information on your own social media platforms!
*UK statistics: Nearly half (48%) of Internet users aged 65-74 and 41% aged 75+ maintain social media accounts. Further, there are currently 850,000 people with dementia in the UK with a predicted rise to 1 million+ by 2025.